|
BCKOnline originated as an idea from an Australian
woman diagnosed with breast cancer.
The development and creation of the website has been funded through
a Linkage Grant from the Australian Research Council (2002-2003)
and BreastCare Victoria - an initiative of the
Department of Health and Human Services, Victoria.
The portal represents the combined efforts of:
-
A team of researchers from the
School of Information Management & Systems
at Monash University.
-
The Breast Cancer
Action Group (Vic) - an advocacy group for women with breast
cancer. Ms Sue Lockwood
- Monash University Staff - Prof Sue McKemmish, Dr Frada Burstein, Dr Julie Fisher, June Anderson, Rosetta Manaszewicz, Kun Kevin Hu, Mitchell Slocombe, Andiwijaya Sumartono,
Dr Sergio Viademonte.
-
BSE Students (Industrial Experience Project) - Roshini Abraham,
Wallace Chan, Sheena Ann Samuel, Hendry Setiawan, and Jack Shen.
(under the supervision of Professor Heinz Schmidt and Dr Sita
Ramakrisnan)
The philosophy underpinning the objectives and creation of BCKOnline are:
-
The information needs of women with breast cancer and their
families are highly individual, dynamic, and varied. BCKOnline
believes that it is the individual user herself who is in the
best position to determine the type of information which will
best suit her at any point in time.
-
The provision of timely, accessible, and 'quality' information
can improve health outcomes, medical decision making and psychological
well-being.
-
Personal, facilitative and/or anecdotal information has an important
role to play for many women and their friends and families, as
they embark on their 'cancer journey'. BCKOnline believes that
the inclusion of women's and their partners' or friend's stories,
anecdotes, and experiential information can contribute to and
enhance the individual's experience of breast cancer information
provision.
-
The ability of users to select the information they require
is an important addition to current information provision strategies.
BCKOnline thus attempts to empower the user through this element
of choice and control.
-
The inclusion of a 'quality report' is further intended to allow
users to evaluate the nature of information according to their
own individual value systems and preferences. BCKOnline does NOT
rate the information - it merely provides a 'checklist' for users
regarding certain quality criteria. Users are free to make their
own judgements.
The search engine uses an open-source search engine named
Lucene. |